Who can receive support services?
People with ALS, their caregivers and family are eligible for our services after they register with us. To be eligible for registration as a person with ALS you must be a resident in Canada and diagnosed with ALS.
Our services are funded largely through individual donations and our annual WALK FOR ALS. We encourage healthcare professionals to access our information and education services.
You may request a registration form or print it from the link below. To register, fill out the form and return it by mail or call 902-439-1600 to arrange a visit. Registration is free and the information you provide will be kept confidential.
We encourage everyone diagnosed with ALS to register. Registration allows you to use our services and helps to strengthen our ability to represent the needs of all people diagnosed with ALS at community, provincial and national levels.
Our Services Include
- phone support to people affected by ALS (people diagnosed with ALS, their families members, friends and caregivers, healthcare professionals, etc) throughout the province of Prince Edward Island. This allows the people affected by ALS to know they are not alone in dealing with this fatal and often rapidly progressive neurological disease. ALS volunteers conduct home visits for people diagnosed with ALS and their families.
- referrals for counselling, training, and other supports according to need (Home Care, Integrated Palliative Care Program, Disability Support, Income Support, Hospice, etc).
- connect our clients and their families with volunteers and other families living with ALS.
- financial assistance for specified costs associated with ALS diagnosis (transportation, special dietary needs, etc).
- medical equipment (hospital beds, wheelchairs, ceiling track lifts, specialized seating cushions, bath benches, commodes, etc).
- respiratory equipment (BiPap, Cough Assist Units and Suction Machines). This includes access to and services of a respiratory tech.
- communication assistance
The children of families living with ALS need to live life as normally as possible. Financial challenges of the disease may prevent families from enrolling children in extra-curricular activities. See application form below.
- $500 per child per year.
Our Services Do Not Include
At this time the ALS Society of PEI does not provide financial assistance for drug prescriptions, counselling or private home care.
Downloadable forms – Adobe Acrobat (PDF) format
To view these files, you will need the Adobe Reader, available from Adobe’s Website.
- Equipment program policies and procedures (32KB)
- Confidential client registration (72KB)
- Information consent form (16KB)
- Champs Programs (9KB)
Note: Equipment shall only be provided when funding/equipment is unavailable from other sources (e.g. government funding, loan cupboards, VAC and Insurance Plans).